Two Steps Forward, One Step Back #WW

Today my Lil’ JaMonkey is a month old! She is doing better but not well enough to come home yet. She started nursing very well and even decided to pull out her NG tube (feeding tube). Her SVT is still not under control so they have adjusted her dosage of heart medications and we have recently discovered that some of the side effects are started to cause her breathing to slow to a stop when she is sleeping. We can’t hold her very long when she is sleeping because she destats too low.

We were hoping to be bringing her tomorrow but they ended up pushing it out so that she can eat a little better. Even though she no longer has her feeding tube in and nursing and taking a bottle she is still getting ahead of herself and forgetting to breathe while she is swallowing so she has to drink from a slow flow nipple. They won’t let her go home on a slow flow so it pushed it out a little longer.

They wanted to keep her until she could go 5 days without having any SVT attacks that required intervention but the cardiologist said that it wasn’t necessary because they could manage it from home. She will be coming home on a monitor so that I will know if she has an SVT attack because right now she doesn’t show any signs while having an attack.

She is gaining weight and is now 5 lbs 8 oz! So fingers crossed that she will get to come home this coming weekend! 

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  1. Lindsay says

    Sweet girl. I’m glad she’s getting closer to coming home. I know it must be impossibly hard for you, but she’s getting the care she needs so that she will be safe and sound for you to take home. What a beautiful little face!
    Lindsay recently posted..Wordless Wednesday: WeaknessMy Profile

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