
We are only having to keep the apnea monitor on her while she is sleeping at night and long car rides. We don’t have any alarms during the day but the last few nights she has had some episodes of severe apnea (she stops breathing) while she sleeps. So I can’t keep her swaddled like she likes. After I unwrap her the alarm doesn’t sound.
We still haven’t had any SVT attacks since a week before we came home from the hospital! That’s the biggest news! Next month the Cardiologist will allow her to grow past her heart medication dosage to see if they can slowly wean her off the medications. If she doesn’t have any SVT attacks then she grew out of it naturally. Right now I check her heart rate a few times a day to make sure she isn’t in SVT.

JaMonkey is literally the worlds best big sister. She brings me everything I need, throws dirty diapers away before I even ask. Cuddles with her daily and even reads her stories.


















So glad things are going so well! She’s getting so big!