I know what my dreams are each morning. For Big JaMonkey to love her Sister as much as her little heart can. For Little JaMonkey to grow out of this SVT mess, for no alarms to sound all day long and she sleeps for at least 5 hours one night. Ok, the last one might have been more my dream but I’m sure she would like it too.
I stay up until midnight each day to make sure she has her medication on time. I keep her bed inches from my face so I can hear if she is breathing. Her monitor is next to my bed blinking towards my face. Thank goodness that things have been doing well so far since we’ve been home. She hasn’t had and SVT since before we came home from the hospital. Only a handful of the alarms that have gone off were a rush to action but they are getting further apart.
Big JaMonkey melts my heart more and more every day. She wakes up and comes into our bedroom and the first thing she asks me is, Mommy if I wash my hands can I touch my baby? She washes her hands and comes over to her bed to pet her head and tell her that she loves her so much. She also turns to me to remind me of how cute she is. She gets upset if the baby starts crying. She rushes over to make sure she hasn’t spit up or needs her pacifier. Her best friend came to visit and she just kept telling her that it was so cool having a baby sister. She was hyping it up because her best friend was also getting a new baby Sister any day now but was not very excited about it.
Later that day I took her to get some ice cream for a special treat and my shy little girl exploded into the store and told anyone and everyone that would listen that she was a big Sister. That she named her Baby Sister Adelia and that she is so cute. The women behind the counter indulged in her excitement and had her raving until I finally dragged her out of the store. It was the sweetest thing I had ever seen.
So far the doctors are all pleased with her progress. Her medication dosage is perfect for her heart right now. We have to do something about her reflux though she is loosing nearly half of what she eats making our night VERY long. Making sure she doesn’t choke on it along with her being hungry a short period later. We have another round of doctors appointments next week so I’m hoping to switch her reflux meds then.
My dreams of some peace with her heart condition are starting to come true. I’m not as stressed. I no longer feel hopeless for Adelia Hope.